This Is M.E
Even though this week (11-17 May) is M.E Awareness week, today, 12th May 2014 is officially M.E Awareness day! I'm taking part in the Blog Chain & below is my contribution to it. I'm hoping, like everyone else involved, that this will help people better understand life with this illness & raise awareness & needed funds for research in how to treat this thing.
Tell us 5 things about you that the people in your life probably don’t know (non-illness-related):
2) I don't remember my dreams.
3) Most of my childhood memories are what other people have told me, or from photographs. I hardly remember anything from being young myself.
5) Despite how I may seem, I'm actually very quiet & find it hard to talk to people.
g ready - shower, getting dressed, doing my hair & make-up leave me feeling incredibly unwell & exhausted before I've left the house. Then being out takes even more out of me so that when I do get back home, I have to go straight to bed. But if I didn't push & put myself through that, to get out even if at times it's only once that week, I wouldn't see or speak to anyone at all expect for my parents.
That having ME/CFS can be a very lonely existence. In most cases this illness stops you from having a normal social life. It stops you from spending time with your friends or family or people in general as most of us can't manage to get out at all & it's not through a lack of wanting to, or being lazy, the fact is, most of us a simply too ill to manage any kind of social interaction. So if you know someone with this horrible illness, please don't just give up on them because in your eyes they no longer want to spend time with you because that is far from the truth, they would love too! Maybe instead of asking them to go out somewhere, ask if you could go see them. A drink & catch up doesn't have to be in a cafe, I'm pretty sure we all own a kettle & can get hold of some cakes!
What is the most frustrating aspect for you of living with ME / CFS?
Thank you for reading this & I hope it helps you gain a bit more understanding of ME/CFS. If you've any questions, then please contact me, either on twitter or just feel free to leave me a comment on here & I'll be happy to help.
Take care all of you & I hope your M.E Awareness Day is a good one!